Wednesday, January 26, 2011

Anxious, Jumpy

Hello Friends, Family & Fans,
This past week I have hardly been able to set my ass down.  I am in bed at 9:30ish as I am worn out.  I have been up at 4:30 to 5:00 am for 4 days. And then up all day.  Not good for me.  I talked with Colleen my Nurse yesterday and we are sure it is anxiety.  .  I would get up do a couple of small things like whip off the kitchen counter, then say go sit down and stay there 15 mins, but I would be back up in a minute or two without realizing it.  It took 4 trips to the bedroom for slipper as I would get there, see something else I wanted to do and forget the slippers.  Colleen says part of this is lack of oxygen to the brain, which is part of the disease.  Great one more thing to look forward too.

I did get up today at 5:00am, but I took medicine right away and actually took a nap at 7:00am.  Baked a cake and frosted it.  Boiled some eggs, did the dishes and got dressed.  Lori took to me Staples and Kroger.  Got about 10 items.  Make Mac and Cheese for dinner with Chicken from the deli.  Ray will have that left over tomorrow night.

I am now using 6 lpm of Oxygen resting and all day and night and kicking it to 8 upon walking any distance.  I notice that I am doing a lot more mouth breathing as I struggle for air.  Lots more coughing too, and swearing.  I am starting to sound like a sailor on a ship for a Long time.  Gonna clean up my act on there.  I hate that part, but I get so frustrated with the hose (lifeline) and other techie things.  I can catch this hose (lifeline) on everything in the house.  You have no idea what talent I have for catching this hose.  I mean really and it is so fun to get clotheslined.  I know exactly how far I can go if I do not get caught on something, so I walk with a purpose (not slowly like I am suppose too)  That is hard to learn, but anyway, I am clotheslined at least 20 to 30 times per day.  So much fun.!!!!!

I am looking forward to a field trip tomorrow to my cousin Judy's house.  The oxygen people were to deliver a tank today for me to use while there and to get home.  I plan to stop at my sisters for a couple of minutes and then home.  It is probably my last long field trip.  Can't pack enough oxygen for more than a couple of hours.

If anyone is interested everything at Quincy Park on lot 15 is for sale.  The golf cart has been sold.  We have a couple of decks and storage shed, etc plus the trailer.  Email Ray if interested in anything.

This is a photo of my R2D2 Tank.  I have 3 of these in the house.  Thanks Jase for the picture.  I will write again soon as things seem to change around here quickly.  I did bake today and I love that.  Load my walker take stuff to and from the kitchen and unload again.  Good eats.