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I met with Dr. Gravelyn today. I had another Spiro meter test and we have decided that I am at a Plateau again. Yes, Thank you Lord. Don't get me wrong this new way of living is trying, but the keyword here is living. I am not happy with this new way being tethered 24 hours 7 days, but I don't have to be happy with it, I just need to do it. I am happy, happy, happy that I seem to be at a standstill again. Plateau's are good and hopefully this one will last for years. Could be minutes, hours, days, months or years. The disease is in total control, but boy am I ever hoping and praying for years. Everyone wants to get to Heaven, but nobody wants to die. (Someone wrote a little song about it)!
"It is not for me to wonder why , it is the challenge I have been given." I read this somewhere and think someone wrote it just for me as I did for a while, wonder why my cancer was cured, just to have my PF accelerate. I understand now that I just have to accept it (not like it) and move on along. I intend to live my life, the best I can.
I am being weaned off the Steroids. I start the step down tomorrow, still it will take 3 to 4 weeks to be entirely off. I start Pulmonary Rehab on Dec 6th. I have an appt on the 3rd to meet the therapist etc. I will go to rehab 3 times per week for up to 12 weeks. Dr. G and I discussed the fact that with the Oxy on 4 I am still winded after walking about 20 feet or so. I am to walk the 20 feet, rest and start again. So that is what I will do. I am tired to be sure, but I can and will do all that I want until this disease makes me sit down. I will need a little help along the way and thankfully I have a great support system with my family and friends. Ray, really I do not know what I would do without you and I so appreciate your support, help around the house and patience. I think we are going to make it. The Spireva did not help so I am not using the inhaler either.
Signing off for now, I am tired and need dinner. Wishing you all a wonderful Thanksgiving we all have so much to be Thankful for. Stayed Tuned!
