Can I get an Amen!!!!

Amen!!!!!!!!!!
I met with Dr. Gravelyn today.  I had another Spiro meter test and we have decided that I am at a Plateau again.  Yes, Thank you Lord.  Don't get me wrong this new way of living is trying, but the keyword here is living.  I am not happy with this new way being tethered 24 hours 7 days,  but I don't have to be happy with it, I just need to do it.  I am happy, happy, happy that I seem to be at a standstill again.   Plateau's are good and hopefully this one will last for years.  Could be minutes, hours, days, months or years.  The disease is in total control, but boy am I ever hoping and praying for years.  Everyone wants to get to Heaven, but nobody wants to die.  (Someone wrote a little song about it)!

"It is not for me to wonder why , it is the challenge I have been given."  I read this somewhere and think someone wrote it just for me as I did for a while, wonder why my cancer was cured,  just to have my PF accelerate.  I understand now that I just have to accept it (not like it) and move on along.  I intend to live my life, the best I can.

I am being weaned off the Steroids.  I start the step down tomorrow, still it will take 3 to 4 weeks to be entirely off.  I start Pulmonary Rehab on Dec 6th.  I have an appt on the 3rd to meet the therapist etc.  I will go to rehab 3 times per week for up to 12 weeks.  Dr. G and I discussed the fact that with the Oxy on 4 I am still winded after walking about 20 feet or so.  I am to walk the 20 feet, rest and start again.  So that is what I will do.  I am tired to be sure, but I can and will do all that I want until this disease makes me sit down.  I will need a little help along the way and thankfully I have a great support system with my family and friends.  Ray, really I do not know what I would do without you and I so appreciate your support, help around the house and patience.  I think we are going to make it.  The Spireva did not help so I am not using the inhaler either.

Signing off for now, I am tired and need dinner.   Wishing you all a wonderful Thanksgiving we all have so much to be Thankful for.    Stayed Tuned!